To my Family and Friends,
I hope all is well with you and yours.
If I miss writing again before Christmas, I hope you have the Merriest Christmas ever.
Sorry it’s been so long since the last update. I have had a bit of a rough during the past few weeks. The chemo has been hard on my immune system and the Doctors had to postpone the start of my 3rd round of chemo this past Monday. The plan is to start next monday if I pass the blood test. Not that numbers make a whole lot of sense to me but I'm told that a 14 is a great test result, and that 5 is the lowest that it can be to receive chemo safely. My test result was a whooping low 1.7, way to low for chemo.
During the last cycles of chemo that ended last March, while sitting in the chemo room with others on chemo (some just getting hooked up and others finishing for the day while others still during the long wait just for the stuff to finish running into their veins), anyway, I saw first hand when others were told that their blood tested to low and couldn’t get their treatment of chemo that day and had to wait a week, just to see if the blood test proved better. I could see the mixed feelings of those that were then sent on their way caused me to think at that time, what a discouraging thing to deal with. I guess now I know that I didn’t really even consider that it could or would happen to me. Yupper, I was right, it’s a discouraging feeling for sure. What adds to the emotional yo-yo ride that cancer treatment brings is the uncertainty that even the appointment is up in the air even after sitting in the chemo room chair and being hooked up to the IV bag. The wait for the blood test results has just been routine for me so far it seems. I won’t take the wait for blood results for granted any longer.
Since last Monday my left nostril has turned to resemble hamburg with near continuous running and bleeding. My lower lip has blistered and split as well. I’m hoping that I can start chemo on Monday next. (I never thought I'd hope for chemo, but!!) The hardest part of a week delay is that the sickest 3 days from the chemo well now fall around Christmas with the worst will be on Christmas Day. Meanwhile, I had to stay away from stores and limit visits to or from anyone because my immune system is so low. The last cycle round of chemo had me miss Thanksgiving. I can handle it OK, but it has been hard on Sue. This was the first Thanksgiving she has ever missed with family and now Christmas too. On Thanksgiving we had a quite time with a nice meal together. We had spaghetti and meatballs. It was very good although I didn't and haven't been eating much. Things just don't taste very good, in fact, I some times can't even deal with the smell it seems.
Sue has been doing OK with her MS. I don't know how she does it, her Doc's thought she would have had a flare up by now because of the added stress in her life. She is a strong woman, proud she's my wife. She went out yesterday and had her hair done. She got a perm, it's been a long time since her last one. It reminded me of how good she looks with that big smile she can muster even during hard and even bad times. She's a keeper, I sure am glad I didn't toss her back in back when I was fishing. lol
The twins are 6 months old and 19 and 20 pounds now. They roll over and sit up on their own now too. They laugh and giggle and each have 4 teeth. They are both healthy and are within the range of kids that were born on time rather than 7 week early. Sue has been able to see them but because of the bugs that have been floating around I haven't been able to see them since I got home from my road trip. Hard to believe I have been home from that trip for about a month and 3 weeks. It feels like months and months. Time is just dragging along it seems, probably because I live one appointment to the next. Now I look forward to my spring break out ride. It is usually a very cold March ride. I plan to keep that tradition going as long as I can.
Sue and I wish you all will have the Merriest Christmas and the Happiest New Year
My warmest regards
Dad Sam chappy friend
Author
Topic: I might be down, but I'm not out! (Read 256178 times)