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Author Topic: I might be down, but I'm not out!  (Read 259481 times)

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ultraruss

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Re: I might be down, but I'm not out!
« Reply #180 on: December 23, 2009, 10:51:15 PM »

Hi Sam & Sue
My husband just told me about y'all. I can honestly say I totally know what y'all are going through. Both my husband and I were diagnosed with cancer in January of 08. It wasn't too very bad for him, because we were lucky and caught it in time...he had ti have surgery but no radiation or chemo but cancer is cancer...physically, and mindly. I wasn't so lucky....but I am still here...My husband was standing behind me while I was writing this and asked why I was telling you guys this.....it amazes me how there are times men can't see any farther than the end of their nose.
In case there are any of you out there that are questioning the same thing....I will try and tell you.

When someone is going through what Sam & Sue are I believe it kinda helps to know they're are so many people out in this cyber world that truly know what is happening to them...what they feel...how desperate and only and afraid they are...but to know that through that all there are this that have made it through....maybe it gives them a little bit of hope so desperately needed. My prayers are with you
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hard10

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Re: I might be down, but I'm not out!
« Reply #181 on: December 25, 2009, 10:06:05 PM »

Sam, I just wanted you to know I was thinking of you on Christmas Day. Y'all are in my thoughts and prayers.

NVTHIS

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Re: I might be down, but I'm not out!
« Reply #182 on: December 30, 2009, 09:54:34 PM »

Hello Chap, I was just checking on you and to let you know my thoughts and prayers are with you.
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NVTHIS

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Re: I might be down, but I'm not out!
« Reply #183 on: January 06, 2010, 05:48:25 PM »

Sam, I have not seen you on in a few days, how are you. Hope your doing well.

Your Friend,
Chris
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kb

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Re: I might be down, but I'm not out!
« Reply #184 on: January 06, 2010, 06:30:05 PM »

Hi Sam. Hope all is well. My prayers and thoughts are with you. kb
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hard10

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Re: I might be down, but I'm not out!
« Reply #185 on: January 06, 2010, 08:27:15 PM »

Alright Chappy. Time to give us an update and let us know how you're doing. Don't think we forgot about you.

chappy

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Re: I might be down, but I'm not out!
« Reply #186 on: January 07, 2010, 03:33:08 AM »

Hi Family and Friends at CVO,

I hope all is well with each and every one of you. Ans Happy New Year, I hope it's the best ever for you and yours.

Sue and I have had a very good Christmas, we saw more family and a better time was had by all with out a doubt. New Years was quiet, I even went to bed at about 7:30 pm.

Not much had happened for me since the decision to withhold Radiation for many reasons and that went for the chemo too. But I saw a chemo/oncology Doctor back at the WRJ Vermont VA and he gave me hope for posible and successful treatment. On top of that I had some x-rays and a c-t scan today for a baseline snapshot of how I'm now doing in my chest since the surgery. Being tired and short on breath and sore seems to be still a part of the healing process.

I go to Boston on Friday for a second opinion to see if I can reciece Radiation Treatment, (my birthday present fron the VA Med Center I spose). I hope it won't be with the grim bagage that the Hitchcock Hospital gave me. I think that whole let down at Hitchcock Hospital was based more on bean counters than fighting this beast. And Boston was willing to operate and added time to my life by doing so, and I am thankful.

On Monday Jan. 11, 2010 I am being reconcidered for chemo-therapy. If it all works out good, I'll start chemo at the Vermont Veterans Hospital on that same monday. Eventhough I'll have to go to Boston 5 days a week for 8 weeks and I would have rather gone more local, OH WELL ! Now, I am more interested in just fighting and being around for a few more rides. Hopefully I can swing a ride to see as many of you great folks that have written a post or e-mail, cards and even phone calls.

God bless you all

I'l write again very soon to let you know what happens between now and Jan 11. My hope is that it'll all be good news

I have been able to tap into your strength each time I read your words.

your friend
Sam  Dad  chappy  friend 
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MIKEYTEE

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Re: I might be down, but I'm not out!
« Reply #187 on: January 07, 2010, 08:15:36 AM »

Sam,
Good to hear from you! Glad to hear your Christmas and New Year went well. You and Sue are in My thoughts and prayers daily. Looking forward to meeting you and Sue and if you venture down this way, know that you are welcome to stay with
us.
God Bless!
Mike
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DJ56

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Re: I might be down, but I'm not out!
« Reply #188 on: January 07, 2010, 12:04:47 PM »


Sam,

Great to hear that your holidays went well.
You continue to be in our thoughts and prayers.
Keep us posted on your progress.   :2vrolijk_21:

DJ
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NVTHIS

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Re: I might be down, but I'm not out!
« Reply #189 on: January 08, 2010, 12:27:37 AM »

Chap it's great to hear that you Sue and family had a wonderful Christmas. I will keep you in my 9:30 prayers that you will continue you fight. Thanks for giving us all a update. God Bless you Sam and please send Sue my Love as well.

Your Friend
Chris
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chappy

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Re: I might be down, but I'm not out!
« Reply #190 on: January 10, 2010, 04:16:13 PM »

Hello family and friends at CVOHarley,

I hope you are all out for a nice warm ride on two wheels. I'd like to be also, but, it's only 21 degrees with icey roads here in Sunapee, NH. This is usually the time of year that cabin fever sets in and winter blues follow closely behind. The season that calls for a plan for a great escape of just a little bit of the snow and cold.  The plan that will calcuate the 2600 mile round trip to Daytona Beach. The fastest two weeks of the year for a resident of the North East, USA.

This seems to be a year that has started with so many things on my mind that Daytona will be out of my reach on my Things To Do List. Pictures of Daytona Beach bike weeks gone past will remind me of those warm sunny and dry days of yesteryear. It seems that this globlal warming has chilled the sunny coast of the sunshine state to match much of the northern states. And all this time I thought that the Floridians really meant it when they said they didn't care how it was done in the north.  lol  This year will see cobwebs only for those two weeks. But short daytime rides can start as early as mid to late March. Getting home is a must do because black ice on the roads go unnoticed untill you feel that sudden slipping slide to one side of the road or the other. That upset stomach is only matched when you just as suddly hit the clean dry tar that will whip you in a falsh to where ever you happen to be looking at that moment in time. If at that same moment you listen very close you can hear the sound of Walt Disney music playing a tune in slow motion. The sadest winters we has brought snow fall that is messured in feet rather than inches as late as May.

Well, here's an update on my Friday visit to the Boston (Jamaica Plain) Veterans Hospital for my Radiation/Oncology second opinion appointment. The short story is the VA Doctor wants me to keep my chemo appointment with the Vermont VA hospital and then go back to the Boston VA Hospital on Wednsday the 13th for a very high contrast c-t scan and a PET scan. His goal is to have a computer calculate the dimensions of my body and match to scale the two scans so they can be laid upon each other to create a 3 dimensional picture of my chest cavity. It will be a 3-D picture similar to a hologram. He said that it will give him a better idea of what he's up against. He said that if it is as he thinks, he will be able to start Radiation treatments in 2 to 3 weeks. The plan will be as I have been told by the other Doctors I've seen, % days a week for 8 weeks. Unfortunately it will be done in Boston rather than the Dartmouth Hitchcock Hospital that just up the road a bit. If this works out for the treatment, at least it's not Albany, NY. I have many options on how to be there and I may switch my method week to week. But daily travel will be unlikely as the weeks pass and the weather worsens. January and Febuary are the worst winter months for these parts. And these treatments would make a trip to Daytona imposible for this year. But, hey, Spring is just around the corner, although the corner is a big one indeed.  lol

Tomorrow, may actually turn out to be my first chemo treatment. That plan of attack seems to be the same as well, one treament every three weeks. It seems that the great risks concerning radiation and chemo treatments that I was warned about at Dartmouth Hitchcock Hospital holds less of a threat to my well being according to the VA Doctors. If I end up getting both treatments, radiation will require me to go to the Boston VA Hospital and I will most likely recieve the chemo treatments at the Boston VA Hospital as well, but only until the radiation is over than I'll get the remaining chemo treatments at the Vermont VA.

Because of my nearly 40 years experience with the VA system the one thing that concerns me most is the ability or rather inability to shuffle paperwork back and forth between facilities. The fiasco of lost or late arriving paperwork or lab/scan reports has already reared it's ugly head more than a few times since last September. Heathcare shouldn't need such proactive assistance from the patient, but, I have learned that I trust noone. Nothing personal, It's just that I've been around the block a few times and no matter how many times I've been around it never seizes to amaze me how differently the scenery is with each passing. I have come to enjoy that fact. That's why I enjoy the Skyline Parkway and the Blue Ridge Parkway and roads such as those. I never tire of the ever changing scenes and the same old veiws are brand new every time. This road I'm on now is unfamiliar to me and I'm hoping that one pass will be enough. Although, I am taking notes just in case.  lol

I'll write again very soon to let you know how the first chemo visit goes.
Something that I had mentioned in an earlier post, I'm glad that I was able to GIVE my hair to Locks of Love before cancer TOOK it from me. I'm glad somewhere there is a girl wearing a wig made with my hair. Even if she is wishing that whoever gave the hair didn't have so much grey.  lol

looking foward to spring
sincerely
Sam   Dad   chappy  friend
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hard10

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Re: I might be down, but I'm not out!
« Reply #191 on: January 10, 2010, 05:20:08 PM »

Chappy, glad to see you're still in good spirits even without the gray hair.  ;D Keep the reports coming knowing that you have touched many people here with your story of courageousness and determination. Keeping you and your family in my prayers,
AJ

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Re: I might be down, but I'm not out!
« Reply #192 on: January 10, 2010, 10:31:52 PM »

Sam,
  It is good to hear you have some specialists seeking to perform further tests. We are praying for the best.

  I am glad to see you take a proactive part in your course of treatment. Far too many patients do not, to their detriment. A small amount of due diligence, from the patient or patient's family, can make a big improvement in the overall result.
 
Praying for you and yours,
Charlie
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Re: I might be down, but I'm not out!
« Reply #193 on: January 10, 2010, 10:55:01 PM »

Chappy,  our prayers are with you, stay strong as you sound, and as we all should love and enjoy the ones close to us and enjoy each and every day!      MIKE and SANDRA
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NVTHIS

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Re: I might be down, but I'm not out!
« Reply #194 on: January 11, 2010, 01:04:56 AM »

Well Chap you did it again, as always you touched my heart but this time in a bigger way. I have been keeping up with you since you started your posting in this thread, and you always sign out with, Sam, Dad and Chappy. Three words that covers most everyone that reads your post but now you have added the most important word of all, FRIEND. I know that all of your CVO Brothers are miles apart but I know that all of them feel the same way I do about you and that is we are friends. No one here takes that word lightly, it does not take a face to face conversation to become friends. But it does require people to care about each other, and if there is one thing that I have gotten from your post is that we do care for each other and care about what happens to each other in our day to day lives. So I guess what I'm trying to say is "Thank You" for your Friendship. I will look forward to your next post and as always I will keep the 9:30 prayers coming your way. I hope that the paperwork is kind to you this go round.

Your Friend,
Chris   
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